American Sickle Cell Anemia Association
www.ascaa.org

A private non-profit organization based in Cleveland, Ohio. ASCAA was founded in 1971 and is one of the oldest sickle cell research, education, and social services organization in the United States. Their objectives are to raise awareness of the conditions of Sickle Cell Anemia.

Anemia Institute for Research and Education
www.anemiainstitute.org

Canadian information about anemia treatment, resources, and events.

Bloodline.net
www.bloodline.net

Online resource for hematology and education and news

Non-profit organization operational since 1954 giving a wide amount of information about thalassemia.

The goal of the Impact Children Foundation (ICF) is to create awareness of Thalassemia (the most common single gene disorder worldwide) in high-risk communities and advance medical research dedicated towards finding an effective cure and safe treatment of this illness.

A nonprofit National Voluntary Health Agency that provides information about disorders of iron such as hemochromatosis, acquired iron overload, sickle-cell anemia, juvenile hemochromatosis African siderosis, thalassemia, porphyria cutanea tarda , sideroblastic anemia, iron-deficiency anemia and anemia of chronic disease.

"Established in 1988 as a national resource for molecular biology information, NCBI creates public databases, conducts research in computational biology, develops software tools for analyzing genome data, and disseminates biomedical information - all for the better understanding of molecular processes affecting human health and disease."

Notes: Contains a good, brief description of the disease along with links to other websites.

Information about the Northern California Comprehensive Thalassemia Program. An excellent resource for social and genetic information. A comprehensive information center for patients and doctors of thalassemia (Cooley's anemia).

Gives an evaluation of the causes and treatments of sickle cell disease as well as current research information.

The Sickle Cell Association of Ontario. They are a voluntary, non-profit, charitable organization located in Toronto.

Notes: This site contains further detailed information on sickle cell disease. They also provide a comprehensive description of sickle cell disease and include a glossary of commonly used terms.

"The mission of this site is to provide sickle cell patient and professional education, news, research updates and world wide sickle cell resources. It is the mission of our organizations to provide world class compassionate care, education, counseling, and research for patients with sickle cell disease. It is our mission to help break the sickle cycle."

Notes: This site contains a comprehensive page on sickle cell anemia.

For kids! Helps children understand what sickle cell disease is all about.

Britain's premier African Caribbean health charity. Their website is continually updated to provide a valuable resource for news, health issues, events, research, membership and ways to support our work.

TASC Unit for the Social Study of Thalassemia and Sickle Cell is based in Leicester in the United Kingdom.
Explores the social aspects of thalassemia and sickle cell anemia.

A nonprofit organization dedicated to providing awareness, knowledge and support to patients, members and friends of Thalassemia. Canadian information about local events, blood safety, thalassemia, and research.

Thalassaemia International Federation (T.I.F.) established in 1987, an International non-governmental Organisation co-ordinating the various issues of Thalassaemia Associations globally, pioneers in the struggle against Thalassaemia (Cooley's Anaemia, Mediterranean Anaemia).

This site was created to inform people of an inherited blood disorder called Thalassemia Major, also known as Cooley's Anemia, and to bring patients and families together for support and education on Thalassemia.